Streaming on YouTube at 7pm BST Friday 3rd April, sign up via www.facebook.com/GBSproject/
At the age of 26, in the space of three weeks, Adam Pownall went from being a fit and healthy dancer and performer to a paralysed man unable to blink unaided.
Getting Better Slowly is his story of being diagnosed with Guillain-Barré syndrome and his two-and-half-year journey to recovery from being isolated in his own body. From learning to walk and talk again to the painful months stuck at home to the first time he managed to play football again, the show asked audiences how they might deal with an unexpected illness or accident, and now sheds light on a journey to the other side of isolation. Getting Better Slowly toured extensively through Autumn 2016 and 2017, and was recorded at Lincoln Drill Hall. The show, which has already reached many recovered GBS suffers, was previously streamed in Spring 2017 to reach those who were currently undergoing treatment for the illness.
Through speech, movement, sound and verbatim text taken from interviews with Adam and his family, the show follows him from diagnosis to rehabilitation, capturing his highs and lows to create an inspirational piece about illness and recovery.
Guillain-Barré syndrome is a rare autoimmune condition affecting the peripheral nervous system, usually leading to temporary or long-term paralysis. Around 80% of those with GBS will make a good recovery, but between 5-10% of people will not survive and the other 10-15% may be left with severe mobility or dexterity issues. Chronic variants such as CIDP are similar but longer-lasting, requiring ongoing treatment.
Following his rehabilitation, Adam returned to work in the arts.
In 2014 he won the Olwen Wymark Award for supporting New Writing within Theatre for the Writer’s Guild for his work in opening and running Create Theatre in Mansfield, before becoming Programme Co-ordinator at Derby Theatre, Artistic Director of Lincoln Drill Hall, and Producer and Programmer at Hull Truck Theatre, where he is currently.
Adam said: “We are proud to be able to share this production again, we think it’s important to share theatre during these times, especially with such positivity at its heart. Our goal has always been to help raise awareness of such a rare condition and make people aware of GAIN charity and the important work that they do. When we toured the production we found that this story, whilst being engaging theatre, is also an important learning tool for medical practitioners, and for anyone who has suffered or whose loved ones have suffered a debilitating illness.
“We are unable to tour the production again and having the streaming footage means we are able to still reach more audiences and raise further awareness, all at no cost which removes any price barriers. The footage will also be captioned making it accessible to more audiences as well.”
GAIN helps people understand and manage acute and chronic variants of the syndrome, raises awareness, and promotes clinical and non-clinical research into these conditions. For further information visit www.gaincharity.org.uk
Running Time: 60 mins | Suitable for ages 11+
Cast Kitty Randle and Adam Pownall
Creative Producer Adam Pownall Writer Nick Wood
Director Tilly Branson Movement Director Marc Brew
Associate Choreographer Kimberley Harvey Designer Kate Unwin
Sound Designer Adam P. McCready Lighting Designer Howell Thomas
Associate Dramaturg Luca Rutherford Production Manager Laura Stone
Streaming recorded by Pilot Theatre
[Adam Pownall & Emma at Mobius PR]